The GlobalSkin Member Impact Fund empowers patient organizations worldwide to deliver meaningful initiatives that improve the lives of people living with skin conditions, through micro-grants supporting four key areas: event planning, communications & marketing, advocacy, and organizational development.
Our Members have created impactful projects that strengthen their communities and advance patient care. This page showcases those completed member stories, highlighting real examples of how the GlobalSkin Impact Fund supports organizations to raise awareness, amplify patient voices, build capacity, and drive positive change globally.
Event Planning
Communications & Marketing
AsoNevus
AsoNevus is a Spanish association that brings together individuals and families affected by large or giant Congenital Melanocytic Nevus (CMN).
They work to raise awareness of CMN, improve medical care standards, and provide support, information and community to affected families — offering guidance, resources, and a space to share experiences and feel understood.
Impact Fund Project
The GlobalSkin Impact Fund enabled AsoNevus to strengthen their rare disease community by enhancing their 2025 Annual Meeting for individuals and families affected by congenital melanocytic nevus (CMN). Through the GlobalSkin Impact Fund's support, the event combined medical updates with tailored psychosocial sessions, workshops, and recreational activities that helped participants share experiences, build resilience, and reduce emotional isolation. Families connected deeply, children felt understood and less alone, and caregivers gained tools to manage stress. The fund made it possible to bring experts, support attendance, and create a meaningful, supportive space that remains a cornerstone of the CMN community.
The Biggest Success of the Project
Our greatest success has been sustaining our Annual Meetings for 23 years. These gatherings not only allow us to learn about new research and medical advances through invited professionals, but also to support each other and share the diverse realities of our families. It is the only moment in the year when our community comes together: children with CMN can normalize their condition, while siblings and relatives learn from other experiences. It is a unique space to meet, share, cry, laugh, learn, and listen—an experience that is truly fundamental for families.
To learn more about this organization, please visit:
Website: https://www.asonevus.orgFacebook: https://www.facebook.com/p/AsoNevus-Asociación-Española-de-Nevus-Gigante-Congénito-100054511208379/?locale=es_ES
Instagram: https://www.instagram.com/asonevus/
Standing Voice
Standing Voice is an international human-rights charity dedicated to defending and supporting people with albinism in Africa. They promote inclusion through education, health care, community programs, and advocacy - working to dismantle stigma, secure rights, improve access to medical and social services, and give people with albinism a powerful, heard voice.
Impact Fund Project
With help from the GlobalSkin Impact Fund, Standing Voice was able to build a modern, accessible website and produce a powerful short film that amplifies the voices of people with albinism and highlight the impact of their programs. This project transformed their ability to share stories, raise awareness, and engage a global audience, replacing an outdated site with a dynamic platform that finally allows their community to be seen, heard, and understood.
The Biggest Success of the Project
A major success of our project was the creation and screening of a short documentary amplifying the voices of persons with albinism and highlighting the impact of our work on our community. The film is featured on our new website, hosted on our Vimeo page, and was showcased during the first World Forum on Skin Cancer Prevention and Management for Persons with Albinism, which Standing Voice co-organised with the Global Albinism Alliance and International League of Dermatological Societies in October 2025. This screening was a project highlight, raising awareness and sharing the experiences of our community with a global audience.
To learn more about this organization, please visit:
Website: www.standingvoice.org
Facebook: https://www.facebook.com/standingvoice
Vimeo: https://vimeo.com/261101488?fl=pl&fe=sh
Instagram: https://www.instagram.com/standingvoiceuk/?hl=en
Organizational Development
Debra Australia
DEBRA Australia is a not-for-profit charity supporting people living with Epidermolysis Bullosa (EB), a rare and painful genetic skin condition. They provide vital services from in-home nursing and wound care to specialised EB clinics, family support, and psychosocial assistance, while also funding research and raising national awareness to improve care and drive progress toward better treatments and a cure.
Impact Fund Project
The GlobalSkin Member Impact Fund enabled DEBRA Australia to strengthen its governance and management practices by engaging an external consultant to guide the development of a comprehensive five-year strategic plan. Through stakeholder discovery, interviews, surveys, workshops, and board consultations, the organization gathered broad input from families, clinicians, researchers, staff, and partners to assess current performance, identify improvements, and shape future priorities.
The Biggest Success of the Project
The biggest success of this project was the creation of a clear, robust five-year strategic plan - shaped directly by extensive stakeholder input- that positions DEBRA Australia to grow sustainably and better meet the increasing needs of the EB community. This new strategy provides a strong roadmap for the future and ensures the organization can effectively support people living with EB across Australia.
To learn more about this organization, please visit:
Website: www.debra.org.auFacebook: https://www.facebook.com/debra.aust
YouTube: https://www.youtube.com/user/DebRAAustralia
Instagram: https://www.instagram.com/debraaustralia
LinkedIn: https://www.linkedin.com/company/debra-australia
Advocacy
HUID Nederland
Huid Nederland is a coalition of patient-organizations for people with skin or hair conditions.
They advocate for better care, raise awareness, support peer-contact, provide education & resources, and represent patients’ interests to healthcare providers, insurers, and policymakers.
Impact Fund Project
With support from the GlobalSkin Impact Fund, Huid Nederland expanded its Skin@School program by creating an international lesson on albinism in collaboration with South African dermatologists and people with albinism. The lesson delivers accurate, age-appropriate information on albinism and sun protection while promoting inclusion and empathy in classrooms. Grant funding enabled development of the English-language module, strengthened by cultural insights from global community engagement, and advanced Skin@School’s mission to bring stigma-reducing skin health education to children worldwide.
The Biggest Success of the Project
The project’s greatest success was developing the albinism lesson in close collaboration with people living with albinism, gaining meaningful insights into their lived experiences and cultural contexts. Participation in the World Forum on Skin Cancer Prevention and Management in Persons with Albinism, including a poster presentation and direct conversations with adults with albinism - deepened this understanding and strengthened the relevance and cultural sensitivity of the final lesson.
To learn more about this organization, please visit:
Website: www.huidnederland.com
Facebook: https://www.facebook.com/HuidNederland
Instagram: https://www.instagram.com/huidnederland/#
LinkedIn: https://www.linkedin.com/company/huid-nederland/posts/?feedView=all
2025 IMPACT FUND RECIPIENTS
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AsoNevu, Spain
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Nodular Prurigo International (NPI), U.K
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Canadian Skin Patient Alliance, Canada
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CORBETTA RDC, Democratic Republic of Congo
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Royal Patches, Kenya
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Psoriaisis Association of Ghana, Ghana
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Standing Voice, Malawai
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National Disabled Albino Nepal, Nepal
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Helping Hands, Pakistan
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Viligo Support and Research Group VITAMIGOS CUBA, Cuba
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Patients and Citizens Involvenment in Health, Zambia
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Eczema Outreach Support, U.K
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International Pemphigus & Pemphigoid Foundation, U.S.
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DEBRA Australia, Australia
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HEROIC ALOPECIAN FOUNDATION (HAF), Nigeria
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Huid Nederland (also known as Huidpatiënten Nederland), Netherlands
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ZEEVITILIGO NIGERIA SUPPORT COMMUNITY, Nigeria
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South African Psoriasis Association, South Africa
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Društvo Atopijski dermatitis, Slovenia
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Fundacion Padece, Chile
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Cross the Goal Foundation Inc, Puerto Rico
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Caring Matters Now, U.K
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Polskie Towarzystwo Chorób Atopowych, Poland
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Zavod Atopika, Slovenia
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Pachyonychia Congenita Project (PC Project), U.S.
26. Hidradenitis Suppurativa Australia, Australia
27. Association of patients with allergies, asthma and atopic dermatitis, Bosnia and Herzogovina
28. Psoriasis Canada (formerly CPN & CAPP), Canada
29. Beautifully Unblemished Vitiligo Support Group, Inc., U.S.
30. VITILIGO SOCIETY OF KENYA, Kenya
31. ALBINISM FELLOWSHIP OF AUSTRALIA, Australia
32. Ethiopian Psoriasis Patients Association, Ethiopia33. Israeli Association for Atopic Dermatitis, Isreal
34. Action for XP, U.K
35. Nevus Outreach Inc., U.S.
36. Gorlin Syndrome Alliance, U.S.
37. PHACE Syndrome Community, U.S.
38. PrP, U.S.
39. Debra Singapore, Singapore
40. Skin Sri Lanka, Sri Lanka
41. Vitiligo - Sri Lanka, Sri Lanka
42. Association des malades de la peau: ECZEMA RDC, Democratic Republic of Congo
43. National Podoconiosis Action Network (NaPAN), Ethiopia
44. SNUPA, Uganda
45. SKAPH, Nigeria
46. Fundación Nacional de Albinismo Simplemente Amigos, Argentina
47. Psoriasis Philippines, Phillipines
A total of 47 organizations representing 28 countries and 20 disease areas qualified for the Member Impact Fund 2025.